Finding and choosing your own team of supports can mean the world of difference

Disability

Last updated

13 Oct 2020

Reading time

4 min read

Share

Mardi and her son, Eric (22) live in Melbourne. Up until a few months ago, Eric, who is living with ASD, stayed inside “24 hours a day”, never leaving his room in the assisted living facility in which he lives.

The support workers provided through traditional providers were unable to connect with Eric on a personal level.

They were often much older and did not share any of his interests. Because of this, despite having sought support from a number of traditional providers and having tried numerous programs for her son, none were successful in supporting Eric to leave his room or engage with the outside world.

Giving Mable a go by connecting with an Independent Support Worker in Eric's age group

Due to their lack of success going down traditional routes, Mardi was looking for a better alternative.  When she came across Mable.com.au, a safeguarded platform where people can take control of the support they receive by connecting with support workers in their area, Mardi decided that there was no harm in “giving Mable a go”.

Mardi knew that she would need someone special for her son, who would be able to “bring him out of his enclosed world and back into today’s land”. Mardi figured that a support worker who was a similar age to her son might be able to connect with him in a way that other support workers had been unable to. She hoped that the right support worker would be able to assist Eric in coming out of his shell, saying that she needed “a young man that had plenty of energy but with also much patience”.

The Connection to the support worker was immediate

Mardi posted up a job ad looking for the right support worker for Eric. Before receiving a response to her job posting, she decided to look through some of the profiles of the support workers on the platform, and came across the profile of Lucas, a young man who was around the same age as her son. Lucas had considerable experience working with people with ASD. She was impressed with both his industry experience and range of interests, which, like Eric, included a love of sport. She instantly had the feeling that Lucas would be a great match for Eric. She says that she hoped that he would respond to her job posting.

He did.

Mardi saw an instant change in her son upon meeting Lucas, saying: “I don’t know what Lucas has, but the connection was immediate”. Their shared love of sports helped them form a common ground on which to connect. The change in Eric was massive – on the first day of working with Eric, “Lucas had him out of his bedroom and outside kicking a ball around the backyard”.

On their first day of meeting, Lucas also made lunch with Eric. The two ate together outside. This was a momentous event, with Eric having not eaten outside of his bedroom for “years”.

Building a team

Lucas is not the only independent support worker that Eric now receives support from. Sue, a former manager of a program that Eric previously attended, is also working with Eric 2 days a week, teaching him useful life skills such as how to cook. Managing support workers for her son has been useful for both Mardi and Eric, with Mardi saying that she can “easily move hours around to what suits mine and my son’s schedule”.

An invaluable connection 

Mardi says that the connection Lucas and Eric have formed has been invaluable and has made a huge impact on Eric. Connecting with Lucas and building a bond has led to a massive improvement, with Mardi telling us that her “boy is wearing his beautiful smile again”. Beyond playing sport together, Lucas is also teaching Eric useful and interesting life skills – at the moment Lucas is teaching Eric how to write the alphabet. Lucas now sees Eric several times a week, with Eric looking forward to seeing Lucas so the two can play some sport and hang out together.

You might be interested in

Disabled mums are the quiet supermums
As the water trickled over the rocks and my kids explored the bush, their laughter mingling with birdsong, I sat quietly on the wooden seat, taking it all in. The peace, the joy - but also something else. My eyes welled up just as my independent support worker glanced at me. She slipped an arm around me and gave a gentle squeeze. I didn't need to explain what I was feeling but she already knew. That feeling is something that I think every parent living with a disability needs to hear and embrace. A different kind of angst Mum - and dad - guilt is almost synonymous with parenting these days. We worry we're not doing enough, not being enough; that there's never enough time, money, or energy. But when you're parenting with disability, that feeling cuts deeper. It's the sting when you can't do something for, or with, your kids. Like driving them to a birthday party, kicking a soccer ball in the backyard. It's crying quietly in the kitchen when disability and parenthood all feels too much.
Independent Thoughts: Melissa and Simone
Independent Thoughts digs deeper into what it really means to live on your terms, sharing insights into life for people with disability and older Australians. We invite guests with lived experience to share their perspectives in an open dialogue. From casual chats to asking some of life's biggest questions, Independent Thoughts covers it all. Independent Thoughts is an invitation to join us as we challenge the status quo, shatter stereotypes, and redefine independence – one open-hearted conversation at a time. In this episode, we meet Simone, who manages support for her dad, Con, through Mable. She speaks with host and Clinical Psychologist, Melissa Levi . Finding the right support Dogs, flowers and a veggie garden. These are three things that bring Con joy, according to his daughter, Simone. But as he got older, it became physically harder for him to stay connected to the parts of life he loved. When Con and Simone felt it was time to begin looking for help at home, it was import
NDIS reforms announced: What we know so far
On 22 April 2026, Health Minister Mark Butler announced major reforms to the National Disability Insurance Scheme (NDIS). The changes have been described as a 'reset' with the intention to refocus the scheme, reduce spending and ensure long-term sustainability. While the reforms are wide-ranging, they will not take effect immediately and will be introduced gradually over time. The Government will introduce the National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill next month, then there will be a lot of debate and community consultation before we see any changes take effect. Here's an explainer of the announcement and the key takeaways. Why the 'reset'? The NDIS was established to support people in Australia living with 'permanent and significant disability' 13 years ago. Since then, its rapid growth has seen the scheme expand much faster than originally forecast. Spending increasing by 10-14 per cent per year. Today, there are more than 75